RARE News

Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29

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1 April 2022

RARE News

Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress

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28 March 2022

RARE News

Mississippi becomes first state in 2022 to sign newborn screening legislation

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17 March 2022

RARE News

New research released with recommendations for improving psychological support at the point of a rare disease diagnosis

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10 March 2022

RARE News

Myhre Syndrome Foundation awards $150,000 in grants

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3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

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2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

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28 February 2022

RARE News

Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community

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15 February 2022

RARE News

The Neuromuscular Disease Foundation Takes the Lead

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4 February 2022

RARE News

The urgent case for patient assistance funding

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3 February 2022

RARE News

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

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20 January 2022

RARE News

RARE Revolution promotions announcement

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7 January 2022

Rare insights

Publication Finds that Modernization of U.S. Newborn Screening System is Necessary, Calls for Change

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6 January 2022

RARE News

Rare disease clinic for Poland Syndrome

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21 December 2021

RARE News

Foundation of the RE(ACT) Discovery Institute

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14 December 2021

RARE News

Sickle Cell Disease Association of America names Regina Hartfield CEO

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10 December 2021

RARE News

Cambridge charity launches crowdfunding campaign to raise £30,000 for the first global AKU registry.

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9 November 2021