Charity & advocacy

Charity & advocacy

NF1 breast cancer awareness campaign: Leading NF1 expert Professor Gareth Evans calls for earlier screening

By Becky Pender

15 October 2024

Charity & advocacy

NF1 breast cancer awareness campaign: Caitriona Plunkett empowers young women with NF1 to prioritise breast health

By Becky Pender

15 October 2024

Charity & advocacy

NF1 breast cancer awareness campaign: Sharon’s story

By ebishop

15 October 2024

Charity & advocacy

NF1 breast cancer awareness campaign: Jodie’s story

By ebishop

15 October 2024

A day in the life

A day in the life of a PSPA helpline manager

By CONTRIBUTOR

14 October 2024

Turning the tide for rare disease

Research into diagnostic tests celebrated at international conference

By CONTRIBUTOR

9 October 2024

RARE News

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

Patient voice

Understanding palliative care

By CONTRIBUTOR

9 October 2024

Patient voice

What is pain?

By CONTRIBUTOR

9 October 2024

Charity & advocacy

Join the movement: championing care for rare musculoskeletal conditions

By CONTRIBUTOR

9 October 2024

Science & tech

MendelScan—AI for good: informing patient and public perception

By editor

7 October 2024

Medical

Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder

By CONTRIBUTOR

2 October 2024

Industry Insights

Putting patients first?

By CONTRIBUTOR

2 October 2024

RARE News

CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign

By admin

1 October 2024

RARE News

Sickle Cell Disease Association of America Inc. holds convention in Atlanta

By admin

1 October 2024

Patient voice

My unending search for a diagnosis?

By CONTRIBUTOR

25 September 2024

Science & tech

Improved patient finding strategies for rare diseases – a win-win for patients and drug developers

By CONTRIBUTOR

25 September 2024

« Previous 1 2 3 4 … 33 Next »