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Sunday sessions
Sunday sessions
How reiki, spirituality and faith help me accept life with a rare disease
By CONTRIBUTOR
15 September 2024
Letters
The math is anything but encouraging
By CONTRIBUTOR
12 September 2024
Charity & advocacy
Alex TLC Monthly Research Summaries
By CONTRIBUTOR
12 September 2024
Medical
Goal Attainment Scaling: delivering patient-centred clinical trials using personalised outcome measures
By Geoff Case
11 September 2024
Industry Insights
NICE’s key developments in 2024 in summary
By CONTRIBUTOR
11 September 2024
Charity & advocacy
Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead
By CONTRIBUTOR
10 September 2024
Turning the tide for rare disease
Sickle cell disease: The urgent need for better care, increased research funding and better treatment options
By CONTRIBUTOR
8 September 2024
Patient voice
Find the power in you
By CONTRIBUTOR
4 September 2024
RARE News
UK LSD Collaborative set to release new short—‘Hadid and I’
By admin
2 September 2024
RARE News
Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life
By admin
2 September 2024
RARE News
Sickle Cell Disease Association recognises Sickle Cell Awareness Month
By admin
2 September 2024
Charity & advocacy
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
By CONTRIBUTOR
31 August 2024
Industry Insights
How ‘do’ we versus how ‘should’ we think about disease awareness activities?
By CONTRIBUTOR
30 August 2024
RARE News
Exercise is medicine for people living with PSP & CBD
By admin
28 August 2024
Patient voice
Rare cancers: Sarcoma and your mental health
By CONTRIBUTOR
28 August 2024
Turning the tide for rare disease
Rare Patient Voice: Helping patients and caregivers share their voices
By CONTRIBUTOR
28 August 2024
RARE News
CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024
By admin
23 August 2024
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