Charity & advocacy

Charity & advocacy

Nystagmus awareness day – 20 June 2020

By CONTRIBUTOR

17 June 2020

RARE News

A global gateway to a lasting legacy

By admin

17 June 2020

Medical

Danny’s Dose changing rules and saving lives

By CONTRIBUTOR

12 June 2020

Charity & advocacy

Welcome new boost for mums and dads of young children with albinism

By CONTRIBUTOR

11 June 2020

Charity & advocacy

Local charity thanks the north-east for the gift of time

By CONTRIBUTOR

5 June 2020

Charity & advocacy

My Little Lockdown Life created by Kate Read & Rebecca Atkinson

By CONTRIBUTOR

12 May 2020

Patient voice

EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa

By CONTRIBUTOR

27 April 2020

Charity & advocacy

Making sense of the headlines: empowered and informed treatment choice in haemophilia

By CONTRIBUTOR

15 April 2020

Medical

With these feet? – A spotlight on young onset Parkinson’s disease

By CONTRIBUTOR

14 April 2020

Medical

Healx using artificial intelligence to find combination drug treatments for COVID-19

By CONTRIBUTOR

6 April 2020

A day in the life

Working from home top tips

By CONTRIBUTOR

23 March 2020

RARE News

Genomenon released genomic landscape for ectodermal dysplasias for Rare Disease Week

By admin

5 March 2020

Patient voice

RAPADILINO syndrome

By CONTRIBUTOR

18 November 2019

Weblinks and references

Signposting weblinks for: Mental Health special issue 012(S)

By admin

10 April 2019

Weblinks and references

References and signposting weblinks for: RARE Patient Partners edition 014

By admin

10 January 2019

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