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Patient voice
Patient voice
Cavernous malformation and the Breaking Barriers Initiative
By CONTRIBUTOR
5 November 2021
Patient voice
Please don’t call my son a patient
By CONTRIBUTOR
3 November 2021
Patient voice
Reframing the conversation around grief
By CONTRIBUTOR
6 October 2021
Patient voice
RARE Revolution’s bereavement survey
By CONTRIBUTOR
6 October 2021
Patient voice
Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure
By CONTRIBUTOR
20 September 2021
Patient voice
Ataxia and us – Louise and Karls’ Story
By CONTRIBUTOR
20 September 2021
Patient voice
World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis
By CONTRIBUTOR
26 July 2021
Patient voice
Martha Harlam is on a mission and has high hopes for the future of ataxia
By CONTRIBUTOR
31 March 2021
Patient voice
Engagement through social support
By CONTRIBUTOR
29 January 2021
Patient voice
Achalasia Action is shining a spotlight on a rare disease of the oesophagus: achalasia
By CONTRIBUTOR
15 July 2020
Patient voice
National CMV Foundation – Amanda’s story
By CONTRIBUTOR
24 June 2020
Patient voice
EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa
By CONTRIBUTOR
27 April 2020
Patient voice
RAPADILINO syndrome
By CONTRIBUTOR
18 November 2019
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