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RARE News
RARE News
DEBRA partners with NHS England to better understand epidermolysis bullosa (EB)
By Becky Pender
11 November 2024
RARE News
HBA Support achieves registered charity status
By admin
7 November 2024
RARE News
DREAMS: a year of innovation and progress in the quest for neuromuscular disease therapies
By admin
31 October 2024
RARE News
Walk with WAPO through the Experiences of People Living with Acromegaly
By admin
30 October 2024
RARE News
MENA Congress for Rare Diseases 2025
By admin
29 October 2024
RARE News
CureDuchenne partners with Blizzard Entertainment and World of Warcraft for limited-time charity pet program
By admin
29 October 2024
RARE News
PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day
By admin
28 October 2024
RARE News
Laura MacNeill named new CEO of CMT Research Foundation
By admin
23 October 2024
RARE News
It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)
By admin
22 October 2024
RARE News
Accessia Health opens financial assistance program For individuals with rare blood disorder myelodysplastic syndromes
By admin
21 October 2024
RARE News
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
By CONTRIBUTOR
9 October 2024
RARE News
CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign
By admin
1 October 2024
RARE News
Sickle Cell Disease Association of America Inc. holds convention in Atlanta
By admin
1 October 2024
RARE News
PSPA invites applications for small research projects looking into PSP & CBD
By admin
24 September 2024
RARE News
13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts
By admin
24 September 2024
RARE News
International Gaucher Alliance celebrates 30 years of international patient advocacy
By Becky Pender
23 September 2024
RARE News
UK LSD Collaborative set to release new short—‘Hadid and I’
By admin
2 September 2024
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