RARE News

RARE News

Conference to pave the way for the next decade of rare diseases

By admin

11 May 2022

RARE News

National health charity CMTUK is to host annual conference on May 6th-7th

By admin

29 April 2022

RARE News

Undiagnosed Day 2022

By admin

28 April 2022

RARE News

California mental health initiative to fight hidden sickle cell symptoms

By admin

8 April 2022

RARE News

Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29

By admin

1 April 2022

RARE News

Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress

By admin

28 March 2022

RARE News

Mississippi becomes first state in 2022 to sign newborn screening legislation

By admin

17 March 2022

RARE News

New research released with recommendations for improving psychological support at the point of a rare disease diagnosis

By admin

10 March 2022

Charity & advocacy

The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments

By CONTRIBUTOR

10 March 2022

RARE News

Myhre Syndrome Foundation awards $150,000 in grants

By admin

3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

By admin

2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

By admin

28 February 2022

RARE News

Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community

By admin

15 February 2022

RARE News

The Neuromuscular Disease Foundation Takes the Lead

By admin

4 February 2022

RARE News

The urgent case for patient assistance funding

By admin

3 February 2022

RARE News

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

By admin

20 January 2022

RARE News

RARE Revolution promotions announcement

By admin

7 January 2022

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