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RARE News
RARE News
People with rare neurological conditions need a much better deal says new Neurological Alliance report
By admin
25 November 2020
RARE News
FSD call for innovative research projects in advanced therapies for Dravet syndrome
By admin
19 November 2020
RARE News
Illuminating the path to youth employment
By admin
18 November 2020
RARE News
Ground-breaking patient-led AKU study published in the Lancet
By admin
11 October 2020
RARE News
International Ataxia Awareness Day
By admin
24 September 2020
RARE News
The yellow front door, the beach hut & those patch houseplants!
By admin
16 September 2020
RARE News
Bardet-Biedl Syndrome UK (BBS UK) publish booklet supporting children and young people with Bardet-Biedl Syndrome in learning environments, across the UK
By admin
10 September 2020
RARE News
Leading NIH expert on GNE myopathy joins the Neuromuscular Disease Foundation (NDF)
By admin
1 September 2020
RARE News
Jeff D’Angelo: founder of CHAMP 1 research foundation tells his RARE story
By admin
11 August 2020
RARE News
RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the ​youth rare disease community
By admin
24 June 2020
RARE News
Launching RARE Youth Revolution platform
By admin
18 June 2020
RARE News
A global gateway to a lasting legacy
By admin
17 June 2020
RARE News
Genomenon released genomic landscape for ectodermal dysplasias for Rare Disease Week
By admin
5 March 2020
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