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RARE News
RARE News
Rare disease advocates learn to accelerate therapeutic development at 9th RARE Drug Development Symposium
By admin
19 March 2024
RARE News
Alnylam launches Hereditary ATTR (hATTR) Amyloidosis campaign to help shorten diagnosis time
By admin
19 March 2024
RARE News
New primer highlights latest understanding of rare inherited disease alkaptonuria
By admin
19 March 2024
RARE News
DEBRA UK asks the British public to BE the difference for EB in 2024
By admin
19 March 2024
RARE News
Launching CamRARE’s ‘The Need for a RARE Patient Passport’ Report for Rare Disease Day
By admin
1 March 2024
RARE News
Coave Therapeutics Receives Grant from the ALS Association to Advance its CTx-TFEB Program as a Potential Treatment for All Forms of ALS
By admin
29 February 2024
RARE News
SMA Europe launches “Care for adults living with SMA in Europe: a benchmarking report.”
By admin
29 February 2024
RARE News
£1.5 million new fund launched to ‘Help the Heart’
By admin
27 February 2024
RARE News
CureDuchenne hosts “Champions in Miami” event on March 9 to help find a cure for Duchenne muscular dystrophy
By admin
23 February 2024
RARE News
CMT Research Foundation partners to advance study of CMT type 1J by Dr Stephan Zuchner
By admin
21 February 2024
RARE News
Patients as Partners in Clinical Research Conference 2024
By admin
19 February 2024
Charity & advocacy
Rare Disease Awareness Day Calendar
By CONTRIBUTOR
14 February 2024
RARE News
MEF2C Foundation & MUSC launch program to develop MEF2C therapeutics
By admin
9 February 2024
RARE News
National Tay-Sachs & Allied Diseases Association hosts first of its kind drug development meeting for GM2
By admin
2 February 2024
RARE News
Get Ready to #ShowYourStripes for Rare Disease Day 2024 29th February: the rarest day of the year!
By admin
1 February 2024
RARE News
CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy
By admin
31 January 2024
RARE News
Sickle Cell Disease Association of America Inc. appoints two to board
By admin
29 January 2024
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