RARE News

RARE News

8th annual RARE Drug Development Symposium – May 1-3, 2023

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7 April 2023

RARE News

Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women

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28 March 2023

RARE News

The Patient Centricity & Engagement Conference – 10th May – London

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17 March 2023

RARE News

The Pharma Social Media Conference – 11th May – London

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17 March 2023

RARE News

Sickle Cell Disease Association of America to promote clinical trials

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16 March 2023

RARE News

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

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28 February 2023

RARE News

Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)

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24 February 2023

RARE News

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

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22 February 2023

RARE News

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

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17 February 2023

RARE News

Three small research grants awarded

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17 February 2023

RARE News

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

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16 February 2023

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

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13 February 2023

RARE News

Shining the light on tube feeding

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5 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

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1 February 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

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24 January 2023

RARE News

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

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23 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By admin

20 January 2023

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