Welcome to our series, RARE Reads—highlighting books in the rare disease space.

About the book

While on average, people with CMMRD get their first cancer diagnosis at just 7.5 years old, Sam Alexandra Rose is beating the odds in her mid-thirties. But it comes at a price, with three cancer experiences and a whole lot of fear and trauma to sort through.

Part memoir, part guide and with a little poetry thrown in, this book illustrates what it’s like to live with a rare genetic condition and significantly increased cancer risk.

CMMRD

This is a book of denial, hope and eventual acceptance, ideal for families wanting to know more about a CMMRD diagnosis and for healthcare professionals looking to better understand the patient experience.

Buy your copy on Amazon and all good retailers.

Editor’s Note: If you’d like to share your book with our audience, email hello@rarerevolutionmagazine.com

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