(30 October, 2024) – We are happy to announce the release of our new acromegaly awareness video entitled “Walk with WAPO though the experiences of people living with acromegaly”. This video was created for Acromegaly Awareness Day, which takes place on November 1^st.

Watch it here:Walk with WAPO through the Experiences of People Living with Acromegaly

This project was made possible thanks to the generous participation of nine patient advocates who replied to our acromegaly survey back in September. They were then contacted and sent questions to answer by video. The resulting video is a compilation of their answers.

They cover many topics such as their first symptoms, their path to diagnosis, their treatment, and the impact of acromegaly on their lives and those of their family, to name a few.

By the end of the video you should have a better understanding of this rare pituitary condition and how it affects those living with it. No two stories are alike, but all wished for an earlier diagnosis and adapted treatments that will improve their quality of life.

A special thanks to David, Donna, Jeremie, Marell, Marie Louise, Martin, Mayulabis, Roz, and Sandra, the faces and voices of this video, for their courage in sharing their stories.

We hope that you will share this video in order to raise awareness for acromegaly. Not only on November 1st, but all year round.

Visitwapo.org

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