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RARE News
RARE News
CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy
By admin
8 December 2022
RARE News
NFL players spotlight Sickle Cell Disease Association of America
By admin
7 December 2022
RARE News
DEBRA launches £5m fundraising appeal to stop the pain of EB
By admin
16 November 2022
RARE News
Winners of Gene People Awards 2022 announced
By admin
16 November 2022
RARE News
Leading Muscular Dystrophy charity gives petrol heads a ‘driving experience of a lifetime’ as it continues its commitment to delivering life-changing wish-fulfilment experiences to children and young adults
By admin
26 October 2022
RARE News
CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy
By admin
20 October 2022
RARE News
The Student Voice Prize: an international essay competition raising the profile of rare disease
By admin
13 October 2022
RARE News
World Orphan Drug Congress 2022 – Europe’s most exciting orphan drug event
By admin
10 October 2022
RARE News
World Duchenne Organization announces Accredited Duchenne Centers Programme
By admin
7 October 2022
RARE News
Sickle Cell Disease Association holds 50th annual national convention virtually
By admin
5 October 2022
RARE News
American Kidney Fund’s Unknown Causes of Kidney Disease Coalition set to advance policies on rare kidney diseases
By admin
26 September 2022
RARE News
The Dash Alliance and RARE Revolution Magazine – levelling up for RARE
By admin
21 September 2022
RARE News
The 2022 Jeans For Genes grant programme is now open and inviting applications
By admin
1 September 2022
RARE News
Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month
By admin
31 August 2022
RARE News
Operationalise: Early Access Programmes Summit Europe 18-20th October 2022
By admin
24 August 2022
RARE News
RARE Rev-inar Episode 001 Early Access Programmes
By admin
24 August 2022
RARE News
Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).
By admin
22 August 2022
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